Prayers and info please!

[Fisher's Mom]

Dawn, I am so happy for you and Jim! This is a scary disease and you need to be able to count on your doc to be responsive. You are so smart to keep looking til you found the right doc before Jim might need dialysis. That way if or when the time comes, you will know your doc well and he will know Jim well and ya'll will have confidence in him. And when you get a good dietitian, the diet thing will be much easier.

Do you feel a lot better now? Do you relate well to him? Did you meet his nurse? Here's a hint: take the nurse home baked goodies. She is the person who will find your doc anytime day or night if you need him!

 

[DawnT]

Thanks for the tip!! I'll have to see what she likes and then "go to town"!! Yes, I feel so much better! I can tell you a ton of weight has been lifted off my shoulders. Now all I have to do is sit down with the dietician and hammer out a plan!

 

[ChefJune]

Our meeting with the new kidney doctor went great. Jim came away from there feeling better about himself, the disease, and his doctor then ever before! The doctor has ordered an ultrasound, made changes in meds, talked to us like we were people that didn't have a degree in medicine and actually took time to answer questions Jim had, explained what things meant and why he(doc) wanted to try things. The doctor also asked me how I was doing, if I needed more info in order to help Jim, and set up to talk to a dietician. What a difference!!

so glad to hear this update. The right doctor is key, and it sounds like you finally got one. I can't deal with those who act like you have no right to know what they're doing, or why!

I know you let out one giant mental "WHEW!"

 

[kadesma]

Fantastic news Dawn,
there is so much that goes on and things that just pop up that it really helps to have a doctor and nurses you KNOW you can count on...Sounds like this new doctor, is more interested in your DH and helping him than his "ego" Than really takes a load off your mind and makes life so much easier...If you need a sounding post, I'm here, hard head and all

kades

 

[DawnT]

Thanks Chef and Kades!! Jim has his ultrasound today, I told him to smile nice and he told me he was going to stick out his tounge. He has his sense of humor back!! WOOHOO!!!

 

[Bilby]

So did they find them okay? They can never see one of mine which is a bit of a problem as the one they can't see is always the one they want to biopsy!!! At least the new one they can find by just poking me in the guts!! Mind you the scar kind of gives them an idea of the location! Also, the new one is 15cm long so I guess it is less difficult for them to "lose"!!LOL

 

[DawnT]

Bilby, I'm not sure they found them or not, but I am going to assume they did as we didn't get any phone calls otherwise!!

 

[DawnT]

Got a call from the Doctor that everything was okay with the ultrasound. Nothing abnormal (other than Jim's wife! LOL). Jim's BP is now back to normal also!!

 

[kadesma]

Got a call from the Doctor that everything was okay with the ultrasound. Nothing abnormal (other than Jim's wife! LOL). Jim's BP is now back to normal also!!

That is great, now just relax and let yourself enjoy some time without this hanging over you...You are doing great, so is Jim..Things have a way of working out..Sometimes not just as we would like, but there is always another way for us..Look for the good and kick the troubles to the curb...
kadesma

 

[Bilby]

Well said Kadesma!! and one huge DITTO!!! LOL

 

[DawnT]

Thank You!!! All of you that have stood (or sat) beside me through all of my ranting and raving I just wanted to say, Thank you. Without your support, encouragement, prayers and well wishes I would have gone insane long ago!!

 

[quicksilver]

DawnT, just looking over old threads.

Was wondering how DH is? Well and good, as are you I hope?

 

[DawnT]

quicksilver, thanks for asking. We are all doing good. DH is busy with everything he can possibly do outside, feeling like the "man" he did before. We go back to the Drs. on the 20th to see what he thinks, but I know DH is definately feeling great and that is what counts. I feel as well as DH feels!! ;>)

 

[LadyCook61]

Dawn, that is good news.

 

[DawnT]

Today he goes to a second opinion DR. He is by himself as I have to work. :>( He has been complaining about his calves swelling if his socks are slightly tight at all, so I hope he remembers to ask/let this DR know about this. Otherwise nothing has changed, he still feels like "the man". :>) Dawn

 

[csalt]

Okay, so my son; who turns 21 tomorrow, just told me that if his blood type matches his dad's he is going to give him his kidney. I told him the odds were against that happening but he is calling his Dr. and setting up testing to screen for the disease, see if he is fit enough etc. I threatened to take away his birthday but he just laughed and said that would give dad 2 for the price of 1!! The brat. I don't know whether to laugh or cry. He is as stubborn as an a** ( probably gets it from me). I'm going crazy here!! And I don't have a rubber room. :>( Dawn

Reading this about your son brought tears to my eyes. You must be so proud of him.
Try to stand back and let him do what he feels he should even though it's causing you such anguish.
"Let go and let God" sounds such a hackneyed phrase sometimes but it is true.
You're not alone in this Dawn, remember that.
Sometimes I think that DC ers are bound together by suffering just as much as by joy.
By the way, I am green with envy at your weight loss.

 

[DawnT]

Update

Just an update; Jim goes Wed. for his fistula surgery. He went to the vascular specialist Fri. for a consultation and comes home to tell me that!! His kidney function is down to 18% now and he has to be ready for dialysis. The specialist did say that if one of the kids is a match that he may only have to have dialysis for a few weeks, so that is something to look forward to. Please keep Jim, the surgeon, and a donor in your prayers. Dawn

P.S. Pray for my sanity while I take care of my grandchildren and Jim!!

 

[texasgirl]

My prayers are with you and Jim!!

 

[quicksilver]

I'm sorry to hear your update. Of course you and all your loved ones will be in my prayers.
Just deal with today, today.

​

 

[kadesma]

Dawn,
from one who knows what is in store, relax and just be there..He will make it. I see he has chosen hemo dialyisis ..it worked well for me and I am fine with the pd that I do now...I wis h you both the very best..Know you are in my prayers and thoughts..Keep us up to date if you have time..It's work but you can do it.

kadesma